Parent Advocacy & Support

Advancement Project – Opportunity to Learn 

Counties: Statewide 

Description: Advancement Project’s Opportunity to Learn program supports grassroots movements that examine, expose and reform practices that lead to the criminalization of students and challenge the privatization of public education.  

• Services: Action Camp: Training youth and parents on how to dismantle the school-to-prison pipeline by helping them to understand data and policies; communications; organizing and popular education; and direct actions and legal strategies 

Eligibility: N/A 

Contact: Tyler Whittenburg; Deputy Director of Opportunity to Learn TWhittenberg@advancementproject.org   

Mapping the Movement for Racial Equity in Education MAP 

Counties: Statewide 

Description: The Flood Center for Education Equity and Opportunity made THIS MAP to map the statewide movement for Racial Equity in Education and Beyond. The goal for this mapping project is to help build a visible network of organizations engaged in this work across the state in order to highlight the efforts that are already underway, especially those that are centering and being led by communities of color. 

Services: The goal of this map is to: 

• Connect parents and students with community groups, advocates, and sources of support and elevate the voices of parents and students of color 
• Help educators, schools, districts, and advocates engaged in racial equity work to identify similar efforts happening across the state and facilitate the sharing of resources, curriculum, strategies, best practices. 

Eligibility: N/A 

Contact: Click on the map to see the organizations in your area that are working for racial equity in the North Carolina schools  

Family Partner Coordinators / Family Support Advocate in MCOs 

Counties: Statewide 

Description: Family Partners Coordinators, also called Family Support Advocates, are hired by Managed Care Organizations (MCOs) in order to support families as they navigate behavioral, medical, healthcare and other systems. MCOs manage the care of NC Medicaid beneficiaries who receive services for mental/behavioral health or developmental disabilities. If a child has Medicaid and is involved in multiple interlapping systems and the family needs support to manage the care of their child, these advocates are well-positioned to assist. They are knowledgeable about the resources available in each particular region they oversee.  

Services:  

• Provides support to families, access to information and referral to community resources 

Eligibility: Children who have Medicaid 

Contact: You can contact the Member Services Line of your MCO (Map of MCOs in NC), or the Systems of Care Coordinator in your LME/MCO on this map, to learn more about the program and who the family partners are in your region. Below are the family partners/support advocates as of 2/23.  

• Alliance Family Partners 
  • Durham County Family Partner Coordinator- Teka Dempson, tdempson@alliancehealthplan.org 
  • Cumberland County Family Partner- Ellen Boahn, ellenboahn@yahoo.com 

• Sandhills Family Support Advocates 
  • Anson & Richmond county – Suzanne Maness; Connectionfsp@gmail.com, 910-627-1769 
  • Moore & Hoke county – Shirlyn Morrison-Sims;  search.family.support.program@gmail.com, 919-906-7103 
  • Harnett, Lee, Montgomery & Randolph county – Adrian Standish, leeharnettfsp@yahoo.com, 910-985-0126 
  • Guilford County – LaMonica Mitchell; guilfordfspadvocate@gmail.com, 919-215-7153 

• Eastpointe 
  • Member Services, 1-800-913-6109 

• Partners 
  • Member Services: 1-877-864-1454, questions@partnersbhm.org 

• Trillium 
  • Member Services: 1-877-685-2415 

• Vaya, Family Partner Staff 
  • Family Partner Clinical Strategies – Julie Davis, 828-225-2785 ext. 1156 
  • Member Relations Manager – Vanessa Bumfield, 828-225-2785 ext. 4401 

Systems of Care Coordinators  

Counties: Statewide 

Description: Systems of Care Coordination is a comprehensive network of community-based services and supports organized to meet the needs of families who are involved with multiple child service systems, such as child welfare, mental health, schools, juvenile justice and health care. Systems of Care Coordinators oversee system coordination for a region and provide a forum for collaboration, support, and action among families, agencies, and community partners to improve outcomes for all children and families.  

Services:  

• System of Care Coordinators can provide support, guidance or consult for organizations working with families, or families who are involved in multiple child service agencies to improve coordination of care 
• Some Systems of Care Coordinators work with Family Partner Coordinators hired by the MCO in your region to support parents navigating systems, and can provide referrals to them 
• Interagency collaboration & community-based services 

Eligibility: All 

Contact: Check this MAP to see the contact information for the Systems of Care Coordinator (SOCC) in each county 

• Durham & Johnston Counties SOCC- Ashley Bass-Mitchell, (919) 651-8498, abassmitchell@alliancehealthplan.org 
• Wake County SOCC- Margaret Soler, (919) 651-8654, MSoler@alliancehealthplan.org 
• Cumberland County SOCC- Sharon Glover, (910) 491-4813, sglover@alliancebhc.org 

Foster Family Alliance of NC 

Counties: Statewide 

Description: Foster Family Alliance of NC provides direct and sustained support for foster parents across NC. The organization is staffed by foster parents who know how to navigate the system first-hand. Some of the organization’s activities are working on foster parent reform, supporting foster parents in building relationships with public and private organizations, and increasing access to information.  

Services:  

• Access to information and services  
• Support with foster parents in supporting their children and navigating systems  

Eligibility: Parents/guardians of children in the NC Foster Care System 

Contact: Phone: 800-578-7770; Email: info@ffa-nc.org; Check the website for contact information of regional leaders 

The Education & Law Project at NC Justice Center 

Counties: Located in Wake, works statewide 

Description: The Education & Law Project works to organize and inform parent groups, community leaders, and advocates on policy issues that influence the quality of local public schools. They offer workshops, community conversation facilitation, and policy presentations. All trainings can be adapted to serve the needs of particular audiences and address local contexts. They also collaborate with local communities to provide intensive Policy Academy trainings for advocates. 

Services: Some training topics have included: Funding for Public Education; Understanding Community and School Based Supports; Supporting our Newcomer/ELL/Immigrant students 

Eligibility: Anyone interested in NC educational reform and transformation, and wanting trainings about organizing for education reform 

Contact: Sarah Montgomery, SarahM@ncjustice.org; (919) 856-3194 

Access Family Support Information Center 

Counties: Statewide 

Description: Access Family Support Health Information Center is a collaboration between the Family Resource Center South Atlantic and Family Support Network of North Carolina. Access Family Support Health Information Center connects families living in North Carolina to resources, support, and training to promote optimal health with a focus on families of color, families of children and youth with special needs, and/or health care needs. 

Services:  

• Families of children with special needs and/or health care needs can receive support around navigating systems and acquiring skills and resources from other families who have had to do the same 
• Annually updated Summer Camp Directory for children with special needs 

Eligibility: Families of children and youth with special needs and/or health care needs 

Contact: For more information on all the services provided to families through Access Family Support Health Information Center, contact the office at (919) 834-9300 or 1-800-852-0042; email fsp.cdr@unc.edu. You can also make a referral for a family here.  

Exceptional Children’s Assistance Center 

Counties: Statewide 

Description: Exceptional Children’s Assistance Center helps parents navigate the special education system, know their rights, and use their voice. They provide information, support, training, and resources to assist families caring for children with special needs from birth to age 26. They also provide support to young adults with disabilities in becoming self-advocates and leaders. 

Services:  

• Education, Resource Advocacy, and Parent Information Center for children with special needs 
• Parent Educator Program: Parent Educators are experienced family members of children with special needs that work with parents to navigate special education including but not limited to:  
  • Talk with family to figure out what options are available to best support their child’s education & offer specialized information, support, training, and community resources 
  • Consult for IEP process, MDRs, comp ed, understanding interventions, and occasionally attending IEP meetings (mostly for those with literacy & language issues).  

Eligibility: Any NC student or parent of a student with disability from birth through age 26 

Contact: For parents to self-refer, they can call (800) 962-6817 or fill out this online form. There are two native Spanish speakers on staff that can work with Spanish-speaking parents. 

Family Support Network (FSN NC) 

Counties: Statewide (Has Regional Centers for Each County) 

Description: The Family Support Network of NC provides information, support, and training for families who have children of all ages with all types of special needs. FSNNC can match families with parents who have children with similar disabilities, provide information, access to resources, coordinate parent support and education groups, offer training on topics of interest for families and professionals, and one-on-one assistance.  

Services: Resource navigation, resource information, and emotional support for families of children with disabilities.  

All FSN Regional Affiliates offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders.  

Eligibility: Parent of child who was born with, or “at risk” for, a developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; who are in a foster care system. 

Contact: Find your local FSNNC Office here. To contact a Resource Specialist, please call 1-800-852-0042. Or, click here to fill out a contact form.  

NCDHHS Children and Youth with Special Health Care Needs (CYSHCN)  

Counties: Statewide. 

Description: NCDHHS CYSHCN’s web resources provides information for families and/or caregivers of children and youth with special health care needs who have a new diagnosis and/or have concerns or questions about their child’s development. Children and Youth with Special Health Care Needs (CYSHCN) have or are at risk for chronic physical, developmental, behavioral or emotional conditions and need health-related services beyond those generally required by children. 

Services: The North Carolina Children and Youth with Special Health Care Needs Help Line offers a toll-free helpline for parents/caregivers of and professionals who work with Children and Youth with Special Health Care Needs (CYSHCN). This is a free information and referral source for caregivers of and professionals who work with children and youth who have or are at risk for chronic physical, developmental, behavioral or emotional conditions, needing health services beyond the care that a child typically needs.  

Offers support on a range of topics such as:  

• Services available under government and community programs;  
• Resources to help pay for medications, equipment/supplies or adaptive devices.  
• Available health care and dental providers;  
• Information on how to find services when relocating to and within North Carolina.  
• Health care transitions, guardianship and alternatives to guardianship. 

Eligibility: Parents/caregivers of and professionals who work with Children and Youth with Special Health Care Needs 

Contact: Helpline: 1-800-737-3028 or Email: CYSHCN.Helpline@dhhs.nc.gov 

NC Department of Public Instruction – Special Education Parent Advisory Councils 

Counties: Alamance-Burlington, Chapel Hill-Carrboro, Charlotte-Mecklenburg, Cumberland, Durham, Gaston, New Hanover, Union, Wake. 

Description: A local Special Education Parent Advisory Council is a district-level, parent-driven group that provides input to the local school district on system-level challenges in special education and related services. There are many names for these groups throughout the state, but the purpose is the same- to advise, advocate, and offer guidance to the district. 

Services: Special Education Parent Advisory Councils promote communication, create opportunities for families to better understand the school system and special education policies, and create a positive working relationship so that all students can be valued, respected and contributing members of their school and community. 

Eligibility: Any parent from the counties listed above who is concerned about special education and related services in their school district.  

Contact: Local contacts listed at each local website listed here. 

North Carolina Navigating Care  

Counties: Statewide 

Description: North Carolina Navigating Care is an easy-to-use online tool to find information and services for families with questions about their young children’s growth and development. The guide presents questions to the user that lead to online resources, tip sheets, and videos – about child development and services in NC for children with developmental disabilities, including autism spectrum disorder. Click here for a one-pager of this tool.  

Services: Resource guides are split into life domains. Life domains are the different aspects and experiences of life that we all consider as we age and grow. These life domains include: 

• Daily Life & Employment- What a person does as part of everyday life–school, employment, volunteering, communication, routines, life skills. 
• Community Living- Where and how someone lives – housing and living options, community access, transportation, home adaptations and modifications.  
• Healthy Living- Managing and accessing health care and staying well – medical, mental health, behavioral health, developmental, wellness and nutrition. 
• Safety & Security- Staying safe and secure – emergencies, well-being, guardianship options, legal rights and issues. 
• Social & Spirituality- Building friendships and relationships, leisure activities, personal networks, and faith community.   
• Advocacy & Engagement- Building valued roles, making choices, setting goals, assuming responsibility and driving how one’s own life is lived. 

Eligibility: Anyone can access their online questions and content 

Contact: Find local resources for your child on their website 

CHADD Triangle Area (Children and Adults with Attention-Deficit/Hyperactivity Disorder)   

Counties: Central NC, but also Statewide 

Description: CHADD’s local support group offers programming and information for families of children with AD/HD specific to their geographic area. These groups provide advocacy, support, networking and information to those affected by AD/HD in their communities. 

Services: Networking, social opportunities and family support through their Facebook group.  

Eligibility: Families of children with AD/HD 

Contact: Email- support@trianglechadd.com; Phone- 919.229.9233 

Duke ADHD Clinic 

Counties: Statewide (located in Durham but clients can travel to receive services) 

Description: The Duke ADHD Clinic offers comprehensive assessments and evidence-based treatments for children, adolescents, and adults with attention deficit hyperactivity disorder (ADHD). They also support families more holistically with access to social workers who can support families of children with ADHD to navigate education systems.  

Services:  

• ADHD Learning Center 
• Individual and family therapy & Therapy groups 
• Medication management and consultation 

• School consultations 

Eligibility: Contact your insurance to make sure Duke AHDH Clinic is covered 

Contact: Appointment Line – 919-681-9185 

Autism Society of North Carolina  

Counties: Statewide 

Description: Autism Society of NC helps families connect with resources, find services, and resolve school issues. They also provide guidance on lifelong issues including employment, residential options, and planning for children’s needs beyond parents’ lives. 

Programs:  

• Autism Resource Specialists in local regions 

• Provide guidance to navigate early intervention, school, community, or adult services, and provide connections to local resources 
• Specialists are all parents of children with autism 

• Chapters/support groups to meet other local families facing similar challenges to share experiences.  

Eligibility: People with ASD (and their families) from birth through adulthood. 

Contact:   

• Check on the Interactive Map for the Resource Specialist associated with each county  
• Headquarters: 800-442-2762 
• Mariela Maldonado (statewide Hispanic Affairs Liaison); mmaldonado@autismsociety-nc.org; 919-865-5066 

Autism Speaks  

Counties: Statewide 

Description: Autism Speaks is dedicated to promoting solutions across the spectrum and throughout the life span, for the needs of individuals with autism and their families. They do this through advocacy & support and advancing research into causes and better interventions for autism spectrum disorder and related conditions.  

Programs:  

• Autism Response Team: Information line for the autism community. Team members are specially trained to provide personalized information and resources to people with autism and their families 

Eligibility: Families that have children with Autism 

Contact:   

• Call 1-888-288-4762 – Available Monday-Friday between 9am-5pm 
• Email help@autismspeak.org 
• Live chat available between 9am-7pm 

TEACCH Autism Program 

Counties: Statewide (Has Regional Centers for Each County) 

Description: TEACCH Autism Program is a university-based system of community regional centers that offers services to meet the clinical, training, and research needs of individuals with autism spectrum disorder, their families, and professionals across the state of North Carolina. They provide screening and evaluation services, parent support and education, intervention services, professional consultation and training, along with other related resources.  

Services: TEACCH Autism Program provides clinical services such as initial referral and consultation, diagnostic evaluations, family consultation sessions, parent support groups, social play and recreation groups, individual counseling for higher-functioning clients, and employment services. TEACCH also provides education and training such as workshops for parents, teachers, and other professionals focusing on characteristics of autism and intervention strategies. TEACCH offers consultation services to programs such as schools or residential communities serving individuals with autism. 

Eligibility: Individuals who are seeking diagnostic testing must complete the referral process and forms. There are separate referral processes by each regional center and forms for children aged 17 and under and adults 18 and over. To complete the referral process, you must have a professional referral completed by a qualified professional.  

Contact: For general information about the TEACCH Program, please contact us at (919) 966-2174 or email us at TEACCH@unc.edu. To learn more about your TEACCH regional center, click here to see which regional center your county falls under.  

• For the Asheville Center:  
  • Phone:  919-445-7020; Fax:  919-445-2352; Email: TEACCH_Asheville@med.unc.edu 

• For the Charlotte Center: 
  • Phone: 919-445-2365; Fax: 919-445-2353; Email: TEACCH_Charlotte@med.unc.edu 

• For the Greensboro Center: 
  • Phone: 919-966-1000; Fax: 336-334-5811; Email: bailey_coe@med.unc.edu 

• For the Chapel Hill Center: 
  • Phone: 919-966-5156; Fax: 919-966-4003; Email: TEACCH_ChapelHill@med.unc.edu 

• For the Raleigh Center: 
  • Phone: 919-445-5800   Fax: 919-445-5799; Email: Ricki_head@med.unc.edu 

• For the Greenville Center: 
  • Phone: 919-966-0211; Fax: 919-445-2356; Email: katie_fox@med.unc.edu 

• For the Wilmington Center: 
  • Phone: 919-445-0680; Fax: 919-445-0691; Email: bonnie_ravo@med.unc.edu 

Duke Autism Clinic 

Counties: Statewide (Clinic located in Durham but clients can travel to access services) 

Description: The Duke Autism Clinic provides comprehensive assessment, diagnosis, treatment, ongoing behavioral and medication consultation for children and adolescents with autism spectrum disorder. They offer holistic services to families and have social workers on staff who can advise on the educational needs of children.  

Services:  

• Autism assessment, diagnosis & medication consultation  
• Ongoing behavioral consultation 

Eligibility: Contact insurance to make sure Duke Autism Clinic is covered 

Contact: Appointment Line – 919-681-7148 

North Carolina Alliance of Mental Illness NC (NAMI)  

Counties: Statewide 

Description: NAMI NC serves residents across North Carolina with support groups, helplines, resources, and education for families and individuals affected by mental health needs and/or mental illness.   

Services:  

• Support groups for people with mental health conditions and families of those with mental health conditions  
• Free education programs for parents and family caregivers of children and teens who are experiencing symptoms of a mental illness OR who have already been diagnosed. 
• Resources to find local mental health providers  

• Helpline for support, questions and referrals to community resources 

Eligibility: Anyone who is experiencing symptoms of a mental illness or has already been diagnosed; any parent, family member, or loved one of someone who has a mental health condition and/or illness and would like more supports or education 

Contact:  

• For general inquiries, phone: 919-788-0801, call or text 
• Helpline: 800-451-9682; Text 919-999-6527; Email helpline@naminc.org (Mon.-Fri. 8:30am – 5:00pm) 
• Click here to find your local NAMI affiliate 

• Submit a question on this contact page. 

NC Families United  

Counties: Statewide; For some services, Counties: Anson, Davidson, Eastern NC, Harnett, Guilford, Hoke, Lee, Montgomery, Moore, Randolph, Richmond, Rockingham 

Description: NC Families United is a family-run organization created by dedicated parents to create policy change in schools and communities, that will support children and community members who struggle with emotional and behavioral issues. NC Families United provides family support and advocacy, in addition to opportunities for youth mentorship and leadership development.  

Services: 

• Family Support Staff in particular regions provide local support and advocacy to families 
• Mentoring services (RENEW) for youth (ages 14-26) that may be struggling with mental health diagnosis or trauma-based experiences. Eligible youth might include those who have mental health issues, broken family ties, have been suspended or dropped out of school, have a history of drug abuse, etc.  
• Links families to State and community partners for the purpose of improving the lives of children, youth, and families with emotional, behavioral, or mental health needs. 

Eligibility: ALL, and some specific programs geared towards youth with emotional/behavioral struggles 

Contact: 

• Currently there are Family Advocates & Navigators for the following counties: Anson, Davidson, Eastern NC, Harnett, Guilford, Hoke, Lee, Montgomery, Moore, Randolph, Richmond, Rockingham 
• Main office: (980)-349-5333 
• For referrals, contact the Director of Programs, Dr. Angela Thorpe- Moss, amoss@ncfamiliesunited.org, or 980-771-2173 

Literacy Moms 

Counties: Statewide 

Description: Literacy Moms is a community of parents of children with learning disabilities who engage in advocacy on behalf of children with learning disabilities. They support parents who want to file complaints against school districts and have filed many state complaints against the Department of Public Instruction for not addressing the needs of children with learning disabilities in schools.  

Services: The group has a Facebook page and posts various events and programs that foster SLD’s literacy and inform parents on special education rights. The two founders of the group assist some parents in filing State Complaints. 

Eligibility: Any parent in NC with a child who has dyslexia or other learning disability. 

Contact:  

• You can connect with Literacy Moms via their Facebook or Twitter.   
• Read this article by one of the co-founders  

Guide to Accessing IDD Services in NC by NCDHHS 

First in Families of NC 

Counties: Statewide 

Description: First in Families of NC is a grassroots family support initiative founded by families looking for new ways to provide and receive support. They offer support to families and individuals in which one family member has a developmental disability or delay. Assistance is provided according to people’s self-defined needs so that they can live and participate fully in their communities. This could include assistance in accessing vocational, social, and educational opportunities in the community; or in accessing other material needs such as home modifications, household items, childcare or respite.  

Services: 

• Building community support around individuals or families with a member with a disability 
• Exploring alternatives to Guardianship for families and people with disabilities 

Eligibility: Families in which one family member has a developmental disability or delay, or is at risk of the same, or has a traumatic brain injury. The family must live in a county served by the Chapter and must meet financial eligibility requirements.  

Contact: They have 14 regional offices across the state; list of FIF chapters and contact information. Main Office in Durham: 919-251-8368; info@fifnc.org 

The Arc of NC 

Counties: Statewide 

Description: The Arc of North Carolina is a state chapter of The Arc of the United States which provides services, resources, and advocacy for people with intellectual and developmental disabilities and their families.  

Services:  

• Care management to help coordinate one’s medical and behavioral health needs and community-based services. 

• Community Navigators/Resource Advocates provide advocacy and education, assistance with developing plans, and help link people to services they need in the community 
• Housing Resource Coordinators provide assistance to people with intellectual and developmental disabilities (I/DD) and their families in locating housing that meets their needs 

Eligibility: Individuals with intellectual and development disabilities and their families.  

Contact: Phone: 919-782-4632; Headquarters: 353 E Six Forks Rd. Suite 300, Raleigh, NC 27609. Click here to find your local chapter.  

Easter Seals NC 

Counties: Statewide 

Description: Easter Seals UCP creates opportunities, promotes individual choice, and changes the lives of people with an intellectual and/or developmental disability (IDD) by maximizing their individual potential to live, learn, and work in their communities. 

Services: Easter Seals UCP offers a wide variety of services across multiple service categories to help children, adults and families living IDD and mental health challenges live their best possible life, such as: 

• Autism + ABA Services  
• Camp Recreation for Adults & Youth  
• Cerebral Palsy Services 
• Child Development 
• Employment Services 
• Foster Care Services 
• Individual + Community Services 
• Adult & Child Mental Health Services 
• Residential Services 
• Technology + Resources 

Eligibility: Individuals with an I/D disability and their families   

Contact: Phone: (800) 662-7119; Fax: (919) 782-5486; Email: info@eastersealsucp.com; Address: 5171 Glenwood Avenue, Suite 211, Raleigh, NC 27612. Click here to fill out a contact form.  

The Carolina Institute for Developmental Disabilities 

Counties: Statewide 

Description: The Carolina Institute for Developmental Disabilities specializes in serving individuals with intellectual and/or developmental disabilities who may have co-existing behavioral, mental health, or medical health needs. These services may include evaluations, consultation with staff specialists, referrals to other medical or behavioral specialists, or participation in family-centered group opportunities. 

Services: Clinical services are designed to provide diagnostic clarification, consultation, as well as intervention and treatment planning for individuals with developmental disabilities and their families. Their evaluation services may include appointments with individual clinicians or an interdisciplinary team representing two or more of the following professional disciplines: Psychology, Speech-Language Pathology, Physical Therapy, Occupational Therapy, Psychiatry, Pediatrics, Audiology, Social Work, and Special Education. Click here to learn more about the types of specific clinics offered.  

Eligibility: Individuals with intellectual and/or developmental disabilities who may have co-existing behavioral, mental health, or medical health needs. 

Contact: To request an appointment, follow these instructions; contact the intake team at CIDDIntake@cidd.unc.edu. 

Down Syndrome Networks 

Counties: Statewide 

Description: Down Syndrome Networks offer support to families who have children with Down Syndrome. 

Services: There are three regional offices across North Carolina that provide the following services: 

• Down Syndrome Association of Greater Charlotte    
  • Virtual Programming: Live and pre-recorded learning opportunities for all ages. Parent/Guardian Webinars & Workshops 
  • Support for parents who just determined they are having a child with Down syndrome through one-one support and group social programs 
  • Summer camps & Social programs 

• Piedmont Down Syndrome Support Network   
  • Support for individuals with Down syndrome of all ages 

• Triangle Down Syndrome Alliance    
  • Support for parents who just determined they are having a child with Down syndrome through one-one support and group social programs  
  • Prenatal Program: Provides a Parent Mentor to parents who just got a Down syndrome diagnosis  
  • The Learning Program: 10-month program that uses effective research-based teaching strategies and customized materials to support families of children with Down syndrome   

Eligibility: Family of a child with Down syndrome 

Contact:  

• Down Syndrome Association of Greater Charlotte, 704-536-2163 
  • (Cabarrus, Iredell, Rowan, Gaston, Lincoln, Union, Mecklenburg, Chester, Lancaster, York) 

• Piedmont Down Syndrome Support Network, 336-739-3696, info@dsagwa.org 
  • (Forsyth, Davidson, Stokes, Davie, Yadkin) 

• Triangle Down Syndrome Alliance, 984-200-1193 
  • (Wake, Durham, Orange) 

Advocates for Medically Fragile Kids NC  

Counties: Statewide 

Description: Advocates for Medically Fragile Kids NC is an organization dedicated to advocating for the rights and needs of medically fragile children and their families. Volunteers work with legislators, senators and the NC Department of Health and Human Services to ensure they are fully educated on the hardships and impact of having a medically fragile child.  

Services:  

• Providing guidance around community support for medically fragile children 

Eligibility: Parent of child who is medically fragile 

Contact: Email: advocatesforfragilekidsnc@gmail.com; Facebook Page 

Child Care Health and Safety Resource Center – Active Child Care Health Consultants  

Counties: Statewide 

Description: Child Care Health Consultants (CCHCs) are trained health professionals with education and experience in both child and community health and early care and education. CCHCs work with early care and education programs to assess, plan, implement, and evaluate strategies to achieve high quality, safe and healthy childcare environments. 

Services:  

• Assess the environments for health and safety in childcare programs 
• Develop strategies for inclusion of children with special health care needs 
• Connect early educators and families to community health resources 
• Provide up-to-date information on regulations and best practices to early educators 

Eligibility: Parent of child who is medically fragile 

Contact: Phone number: 1-800-367-2229; Email: advocatesforfragilekidsnc@gmail.com  

Community Alternatives Program for Children (CAP-C)  

Counties: Statewide 

Description: CAP/C is a statewide waiver program that you can access through your MCO. It provides a cost-effective alternative to institutionalization for a Medicaid beneficiary who is medically fragile and at risk for institutionalization and in need of home- and community-based services. Services allow the beneficiary to remain in or return to a home and community-based setting.  

Services: Referrals to a local program that manage CAP/C care and support accessing: 

• Care advisor/care management 
• Assistive technology, Specialized medical equipment and supplies 

• Home aide & Respite care  
• Training & education  
• Home accessibility  
• Community transition & financial services  

Eligibility:  

• Medically fragile and medically complex children who are age 0 through 20 years of age  
• Require a level of institutional care under the NC Medicaid State Plan  
• Need at least one or more CAP/C home- and community-based services based on a reasonable indication of need assessment that must be coordinated by a CAP/C case manager  

Contact: Referral made by calling 919-855-4340. Click here for more information on the CAP/C referral process. 

Family Support Network of Region A (FSNRA) – Region A Partnership for Children  

Counties: Cherokee, Clay, Graham, Haywood, Jackson, Macon, Swain. 

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, provide information, access to resources, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance.  

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

• Jackson County: 
  • FSN Caregiver Connections for Jackson/Swain/Qualla Autism Chapter: 
    • 1st Tuesday of each month in Bryson City 

• Jackson Caregiver Connections: 
  • 2nd Thursday of each month in Sylva 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. Services are for children aged pre-natal to 5 years old.  

Contact: Phone: (828) 631-3900 Ext: 126 (CDSA office); Email: jmiller@rapc.org 

General Special Needs 

Family Support Network of Western NC 

Counties: Buncombe, Henderson, Madison, Polk Rutherford, Transylvania 

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources. 

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; who are in a foster care system. 

Contact: Jessica Edwards, Jessica.edwards1@hcahealthcare.com, (828) 775-4969 

First Resource Center 

Counties: Buncombe, Haywood & Henderson Counties 

Description: First Resource Center provides community navigators who can help locate and access community resources, and develop relationships that promote community inclusion and support the individual and family in implementing their person-centered plan. Many of the staff members at FIRST are parents of children with special needs or disabilities. Team members are trained in special education law and procedures, community support and resources, specific mental and developmental disabilities, and associated issues. 

Programs:  

• Community Parent Resource Center 

• Information about the special education process and parents’ rights. Staff can also attend IEP meetings, but this service is limited due to funding and schedules. 
• Inclusion resources that show how students can be successfully included in general education classrooms 
• Community and online trainings  
• Assist the family with problem-solving strategies and direct callers to other community resources by telephone 
• Referral to medical, educational, community services, and support groups 

Eligibility: Any parent in Buncombe, Haywood, or Henderson counties whose child has special needs or disabilities 

Contact:  

• Email info@firstwnc.org, or call for a personal appointment (828-277-1315) 
• Community Parent Resource Center Director, Janet Price-Ferrell, janet@firstwnc.org;  
• Parent Educator, Amanda Berry, amanda@firstwnc.org;  
• Parent Group Facilitator and Latinx Outreach, Amy Moose, amy@firstwnc.org 

Parent 2 Parent Family Support Network 

Counties: Alleghany, Ashe, Avery, Mitchell, Watauga, Wilkes, Yancey 

Description: Parent 2 Parent Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources. 

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. 

Contacts: Phone: (828) 262-6089; Email: hayeskl@appstate.edu 

Family Support Network HOPE (FSN H)  

Counties: Alexander, Burke, Caldwell, Catawba, McDowell 

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources. 

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. 

Contacts: Phone: (828) 256-5202; Email: Vickifsnhope@gmail.com

Family Support Network Of Trusted Parents (FSN TP) 

Counties: Mecklenburg  

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources. 

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

• Parent Focus Group: 4th Thursday every month 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. 

Contact: Phone: (980) 229-723; Email: Nikia Bye, Nikiafsntp@trustedparents.org 

Mental Health America of Central Carolinas  

Counties: Mecklenburg & Cabarrus 

Description: Mental Health America of Central Carolinas offers support services for parents, caregivers and their youth with emotional, behavioral and/or mental health concerns. 

Services:  

• ParentVOICE: Family Support Specialists offer one-to-one support by preparing parents for and accompanying them to meetings with schools, service providers, and child & family teams. Family Partners also serve as an educational resource to parents and caregivers seeking ways to improve children’s ability to function successfully at home and in school. Family Partners also offer Triple P: Positive Parenting Program with tips, tools and strategies to help parents manage misbehavior and raise happy, confident kids and teens. 
• Compeer Program: Compeer matches adults living with a mental health diagnosis with compassionate community volunteers who provide one-to-one supportive friendship and mentoring relationships to offset the social isolation and loneliness that can accompany mental illness. Compeer matches meet virtually or face-to-face at least twice a month. Many go to a movie, have lunch, walk and talk, or enjoy other social activities together. Compeer volunteers make a minimum one-year commitment to the friendship. 

Eligibility: Any parent or caregiver of a child with emotional, behavioral and/or health concerns who resides in Mecklenburg or Cabarrus counties.  

Contact: Contact (704) 365-3454 for help navigating mental health support services. Contact a Family Support Specialist: (704) 365-3454 ext. 219. 

Family Support Network of Greater Forsyth (FSNGF) 

Counties: Davidson, Davie, Forsyth, Stokes, Surry, Yadkin. 

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources.  

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

• Specific to Forsyth County: 
  • El Grupo de Esperanza: (Spanish Speaking Families) 
  • 2nd Monday from 7-8:30pm 
    • To Register, Contact: Rosa Sanchez at, RosaFSN@thecfec.org 
  • Fella-ship (Group for Dads): 
    • Meets quarterly 
    • To Register, Contact: Chris Gentry at ChrisFSN@thecfec.org 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. 

Contacts: Phone: (336) 703-4289; Email: chrisfsn@thecfec.org

Amazing Grace Advocacy 

Counties: Cabarrus, Iredell 

Description: Amazing Grace Advocacy supports families and children who are struggling with the challenges of Autism, Intellectual Disabilities, Mental Health/Illness Disorders, Childhood Trauma, Substance Use Disorder and other Neurological Disorders. They provide navigation and support to improve the quality of life for all. 

Services: Highly trained navigators that can provide support with navigating/connecting with resources in some of the following areas: 

• School Supports 
• Therapy & Mental Health Services 
• Medical Providers; Insurance and Medicaid Programs 

• Community Supports; Recreation for Families 
• Parent Self Care 
• Long Term Planning 
• Complex Children Services 

Eligibility: Families in need of support with navigating care and advocacy for their child. 

Contact: Family intake form to get started  

Family Support Network of Southern Piedmont (FSNSP) 

Counties: Cabarrus, Iredell, Rowan, Stanly, Union.  

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources. 

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. 

Contact: Main office: (980) 522-8740; ccranford@fsnsp.org

Family Resource Center – South Atlantic (Houses FSN of Greater Triangle) 

Counties: Durham, Guilford, Wake (FSN of Greater Triangle serves Chatham, Durham, Orange, Person, Wake) 

Description: Family Resource Center helps families of color and children with special health care needs acquire the skills and resources to help their child/youth obtain optimal health. Family centered practice to ensure safety, permanency, and well-being. Create a partnership with the family and provide services that engage, involve, strengthen, and support families to become self-sufficient. 

Services:  

• General support and navigation through systems 
• Day 2 Day Dads: Works to improve employment and economic mobility opportunities foster healthy relationships and strengthen child-family engagement among fathers.  
• Parenting Wisely:  Provide tools and tips to parents to get their children through difficult times  
• Teens against bullying: Peer led victimization assistance program for youth who have been victimized through bullying 

Eligibility: Any parent in the counties listed above whose child of color or has a disability or special healthcare need.  

Contact: You can make a referral here. 

• Resource line, 1-800-852-0042 
• Office phone, (919) 834-9300, ext. 103  
• Health Information Resource Specialist, (919) 714-2465 

Family Support Network of Central Carolina (FSNCC) 

Counties: Alamance, Caswell, Guilford, Randolph, Rockingham.  

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources. 

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

Some parent groups that run in this chapter include: Dad’s Group, Black Parent’s Group; Mom’s Group. 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. 

Contacts: Main Office: (336) 832-6507; support@fsncc.org; Click here for upcoming parent support group locations & dates.

Education Justice Alliance (EJA) 

Counties: Wake 

Description: The Education Justice Alliance is a group of concerned individuals in Wake County working for a reduction in the number of public-school students pushed off the academic track through unfair suspensions, harsh discipline policies, and academic failure. They envision a relationship-centered public school system that truly values parents and students as the decisions makers and active agents of change. 

Services: EJA is a hub for parents of Wake County students to connect around issues, provide support to each other, and act to demand changes. They provide assistance to parents when navigating various aspects of the public school system. EJA also runs various trainings and workshops for parents, educational and inspirational talks on school transformation, and run various campaigns in Wake County including: 

• #CounselorsNotCops: A campaign that aims to educate WCPSS officials on the importance of divesting from law enforcement and investing in school support staff, such as school psychologists, mental health therapists, school counselors, nurses and other support staff such as Peacebuilders. 
• Too Young to Suspend: A campaign that seeks to reduce the racial disparities in elementary school suspensions. EJA demands that WCPSS prohibits pre-K to 5th grade students from being suspended or expelled from school with limited exceptions. The intent is to prevent suspensions or expulsions of young students who misbehave or willfully defy school authorities but are not any danger to other students.   
• Protecting Immigrant Students: A campaign of community activists, organizers, parents, and students that demand Wake County Public Schools System (WCPSS) implement protections for immigrant and undocumented students. Continues to advocate for policy changes to WCPSS Superintendent and Board of Education.  

Eligibility: Anyone concerned with public education in Wake County Public Schools, or wanting to connect to make promote change; parents/guardians of children in WCPSS 

Contact: info@ejanc.org 

El Centro NC 

Counties: Durham, Wake, Orange, Person, Granville, Vance, Franklin, Johnston, Lee, Harnett, Cumberland 

Description: El Centro Hispano (ECH) is the largest Latino-led/Latino-serving organization in the state and has been working with and on behalf of the Hispanic/Latino community in Durham, Wake, Orange, and neighboring counties since 1992. ECH strives to dismantle systemic, institutional, and historical barriers, so they no longer determine the population’s socioeconomic, education, health opportunities and status.  

Services: El Centro Hispano’s Education Department focuses on school readiness & achievement and adult education through expanding the capacity of academic institutions, educators, parents, and education leaders to promote and assure the learning and achievement of Hispanic/Latino/Latinx community members. 

• Advocacy In Early Education: This program is aimed at Latino parents with children ages 0 to 10 through dialogues that reflect issues that affect early education with the participation in decision-making tables at the state level. 
• Family Academy Program: This program supports families to understand the school and university system with monthly workshops that offer academic tools for positive impact, unifies parents and educational organizations. 
• Padres Comprometidos: The parents’ workshops enable parents to discuss pertinent topics about their children’s development and education in weekly workshops facilitated by guest experts and educators. Click here to register.  

Eligibility: Any Hispanic/Latino family in Durham, Wake, Orange, Person, Granville, Vance, Franklin, Johnston, Lee Harnett, & Cumberland County.  

Contact: To contact for more info, please email lhickey@elcentronc.org, or call (919) 687-4635 x 131. 

Empowered Parents in Community (EPIC) 

Counties: Durham 

Description: EPIC works to dismantle systemic racial inequities in the education system through collective organizing and intentional engagement of Black parents, caregivers, and communities. They empower people to advocate for high quality educational opportunities and the equitable distribution of resources within schools.  

Services: 

• Circle of Hope Program: To support parents’ mental health in an effort to build parent capacity, share resources and support each other to do the work that lies ahead in disrupting systemic racial inequities in education. 
• Empowered Families: They bridge home and school through creating a safe space to hear from parents/caregivers lived experiences and organize and empower parents/caregivers to collectively advocate for a common goal – high quality, culturally competent education for Black children so they can thrive. 
• Community Building: They bring parents, caregivers and community members together across the community to build on shared values, share educational concerns and resources, and learn to advocate for Black children at the school and district levels. 

Eligibility: Parents of children in Durham County 

Contact: info@EPiC-NC.org 

The Ari Advocacy Center 

Counties: Durham 

Description: The Ari Advocacy Center directly supports and advances the educational development of Black school-aged children, including those with a full range of disabilities, and their families through a cohesive collaborative strategy of evidence-based practice, research, direct support services, and support.  

Services:  

• Collaborative care guidance  
• Review of IEP records, assessment and progress monitoring 
• Support at IEP meetings 
• Explore Post-secondary education options 

Eligibility: Black children, young adults, parents, family members, and caregivers of North Carolina’s school-aged children 

Contact: Nicole Jimerson, TAC@thearicenter.org

NC Cooperative Extension – Parent & Family Support and Support Training (PFAST) 

Counties: Durham 

Description: NC Cooperative Extension offers a Parent & Family Support Training program; a free 8-week training for parents of children in the NC public school systems. The training covers information and strategies for how to navigate your child’s school and how to help support transform their educational experience. It is offered in the Fall and Spring semesters each year.  

Services: Virtual and in-person trainings focusing on parent engagement, navigating the public school system, communication styles, and school accountability.  

Eligibility: Families who reside in Durham County 

Contact: Email: shouse@dconc.gov 

Durham Children’s Initiative 

Counties: Durham 

Description: Durham Children’s Initiative aims to create a pipeline of high-quality services for youth and their families that helps them to overcome the barriers to their success. The vision is that every youth graduates from high school and is ready to transition to college or a career.  

Services:  

• DCI Family & Youth Advocates: DCI’s Youth and Family Advocates walk alongside families to ensure that they receive the highest-quality interventions possible aligned to their unique needs. Advocates develop and implement programming for students and provide direct advocacy services to assigned students and their families. Advocates work to promote academic, social, and personal success for DCI youth. Their focus is on developing healthy relationships by maintaining weekly contact with youth and families and ensuring that each receives empowering, high-quality, and appropriate supportive services. 
• Out-Of-School Learning: Supports students by offering before school, after school, and weekend programs, academic coaching support, literacy support, summer learning camps, and tutoring and homework help.

Eligibility: Families with children and youth in Durham County 

Contact: Email: TheDurhamChildrensInitiative@dci-nc.org; Phone: 919-908-8709 

Family Success Alliance 

Counties: Orange  

Description: The Family Success Alliance (FSA) was formed as a place-based initiative to work with Orange County families to ensure success from cradle to college and career. FSA uses a “collective impact” approach to bring together community members, local government agencies, non-profits, and other community leaders who are committed to ensuring that all children in Orange County have the opportunity to thrive in school, jobs, and community. The initiative is designed to reduce the effects of poverty on children’s development and academic achievement by implementing evidence-based practices that are responsive to the priorities and needs of families, and by influencing larger systems and policy change to create a more just community. 

Services:  

• Navigator Program: A peer support program in which navigators support families in reaching their goals, connecting with schools and community services and programming, and bringing family perspectives to help improve services and break down systemic barriers to success 
• Summer Kindergarten Readiness Program and other summer & afterschool enrichment activities, available through zone schools in both the Orange County and Chapel Hill-Carrboro City School Districts 
• Coordination & support for programming that aligns with family goals, provided by partner nonprofit agencies (e.g., mental health services, financial planning, childcare scholarships, etc.) 

Eligibility: 

• Family has a child 0-18 in the home; located in their service areas in Orange County 
• Family is eligible for Free and Reduced-Price Lunch 

Contact: Main office: (919) 245-2071; fsa@orangecountync.gov; Facebook page 

ISLA NC 

Counties: Durham 

Description: ISLA NC builds community leadership through educational Spanish language and cultural immersion programs. They support Spanish speaking families to navigate the public education system. Some of their goals through their advocacy and programs are: 1) Provide Spanish-speaking parents access to resources to raise happy, healthy, bilingual families, 2) Lessen the academic opportunity gap between Hispanic/Latino and non-Hispanic/Latino students, 3) Give primarily low-income, Spanish-speaking students the opportunity to gain literacy skills in their native language of Spanish.  

Services:  

• Support staff available to support families navigate the school system 
• Isla Padres: Helps Hispanic/Latinx parents get access to resources and information about raising their children, particularly with the educational system in the US 
• Isla Los Sabados: Weekly educational heritage language immersion program for children ages 3-17 that aims to close the opportunity gap and open doors for Hispanic/Latino youth, their families and community  
• Isla Verano: Kindergarten through rising 5^th grade students learn Spanish through culture in a fun and interactive environment 

Eligibility: Children ages 3-17; Hispanic/Latino student’s families primarily in Orange County 

Contact: hola@laislaschool.com, 919-265-7692; Office located in Chapel Hill 

Student U 

Counties: Durham 

Description: Student U is a program that offers academic support and whole family support for Durham students. The program follows students from middle school through high school graduation. 

Services:  

• Support staff available to help families navigate the school system 
• Learning specialist on staff to support the development and evaluation of IEPs, and social worker on staff who can support development of BIPs 
• After school one-on-one academic support 

Eligibility: Student who receive free or reduced school lunch (FRL) or are first generation, and that have academic or behavioral needs can enter the lottery. They encourage students to apply at their main entry point in 5th grade (elementary school students), and then work with them through high school and post-secondary plan. They have a few spots in other grades each year (7th and 8th grade, but mostly not past 9th grade). 

Contact: admin@studentdurham.org 

Coalition of Concerned Citizens for African American Children  

Counties: Wake 

Description: Coalition of Concerned Citizens for African American Children is a parent-based organization advocating for students who attend public schools. Their goal is to empower parents to become effective advocates for their children while providing them with information on WCPSS’s laws, policies, and procedures that govern children and to assist parents in helping their children make choices that will enhance their children’s educational opportunities.  

Services: 

• Work with parents to become advocates in their child’s education and the public school 
• Provide information on WCPSS’s laws and policies  

Eligibility: Any parent of a child in WCPSS 

Contact: ccaac_aacca@yahoo.com; Facebook Page 

We Are (Working to Extend Anti-Racist Education) 

Counties: Durham County 

Description: We Are provides anti-racism training for children, families, and educators. They use a three-pronged approach to dismantle systemic racism in education by offering summer camps for children in rising 1st-5th grade, professional development for educators, and workshops for parents & families. 

Services: We Are’s newsletter offers information, articles, links, videos and resources for parents and families. They can support families in envisioning an anti-racist education at their child’s school, and ways to organize around that. They offer anti-racist education workshops & presentations, and you can click here to learn more.  

Eligibility: Any parent who is concerned about racial equity in their student’s school in Durham County 

Contact: Email: admin@weare-nc.org; Click here to contact a member of We Are.  

VOW (Village of Wisdom) 

Counties: Durham County 

Description: VOW seeks to uplift Black youth and families by closing the academic opportunity gap between students of different races and cultivating a positive racial self-concept for Black children. To eliminate racial injustice in education, VOW develops resources and tools for students, teachers, and parents to support Black students in their intellectual pursuits and encourage curiosity.  

Services: The VOW newsletter, Village Updates, makes parents and students aware of opportunities related to education and equity in the Durham area. VOW also runs a Black parent fellowship called the Dreamship. 

Eligibility: Any Black parent/guardian or parent/guardian of a Black student, focused on Durham area  

Contact: Email: Nadiah Porter, Parent Amplifier: nporter@villageofwisdom.org   

General Special Needs 

Family Resource Center – South Atlantic (Houses FSN of Greater Triangle) 

Counties: Durham, Guilford, Wake (FSN of Greater Triangle serves Chatham, Durham, Orange, Person, Wake) 

Description: Family Resource Center helps families of color and children with special health care needs acquire the skills and resources to help their child/youth obtain optimal health. They engaged in family centered practice to ensure safety, permanency, and well-being. They create partnerships with families and provide services that engage, involve, strengthen, and support families to become self-sufficient. 

Services:  

• General support and navigation through systems 

• Day 2 Day Dads: Works to improve employment and economic mobility opportunities foster healthy relationships and strengthen child-family engagement among fathers.  
• Parenting Wisely:  Provide tools and tips to parents to get their children through difficult times  
• Teens against bullying: Peer led victimization assistance program for youth who have been victimized through bullying 

Eligibility: Any parent in the counties listed above whose child of color or has a disability or special healthcare need.  

Contact: You can make a referral here. 

• Resource line, 1-800-852-0042 
• Office phone- (919) 834-9300, ext. 103  
• Health Information Resource Specialist- (919) 714-2465 

The Durham Special Needs Advisory Council (D-SNAC) 

Counties: Durham 

Description: D-SNAC is a group of families working in collaboration with education professionals and community members to support and improve the educational experience and outcomes of students with special needs in Durham Public Schools. D-SNAC serves as a link between EC parents and the district by sharing information, identifying concerns, and improving collaboration.  

Services: 

• Forum for parents to connect with each other around their children’s special needs and making changes to support their children in the DPS 
• Webinars for parents to learn more about their rights and responsibilities, services provided by Durham Public Schools for students with special needs, self-advocacy tools, and other areas of concern related to the education of exceptional children.  
• Publishing resources for families of Durham students with disabilities (here) regarding learning & curriculum, IEPs & 504 Plans, parents’ rights in special education, resources for learning at home, therapy services, and wellness at home, and other community resources provided by Durham Public School Exceptional Children Services Department, the Durham Special Needs Advisory Council, and the Community Equity, Data & Information Lab at the UNC Chapel Hill School of Information and Library Science. 

Eligibility: Any parent or caregiver of a child with special needs enrolled in Durham Public School System.  

Contact: durhamsnac@gmail.com. Click here to find your DPS facilitator by school

Community Partnerships – Community Guide Services 

Counties: Wake 

Description: Community Guide services are designed to help children and adults with intellectual/developmental disabilities as they work towards achieving their personal goals. The purpose of Community Guide services is to encourage self-determination and self-direction; increase participants’ ability to be involved and included in their community; and to help participants develop social networks and connections within their own community. Community Guide services are short-term, temporary (up to 6 months), and phase out when goals are achieved. Services are also provided as needed: participants can enter, exit, and re-enter the program as their needs change. 

Services:  

• IEP advocacy and parent education 
• Locating financial assistance to meet basic needs (housing, utilities) and to pay for other necessary items. We can also help participants access donated items 
• Locating after-school programs, social activities or social interest groups that include children with disabilities. 
• Educating participants and their families about how to navigate the disability services system 
• Linking to non-Medicaid resources related to financial planning, renting or purchasing a home, or applying for public housing. 

Eligibility:  

• Live in Wake County 
• Age 3 or above with an intellectual/developmental disability 
• Have Medicaid 

Contact:  

• Jeanette Kelly, Program Manager, Phone: 919-781-3616, ext. 287 
• Office: 3522 Haworth Drive, Raleigh 

SEEDS of HOPE Project & Disaster Recovery Center 

Counties: Robeson 

Description: Seeds of Hope came together to serve the residents of Robeson County during a disaster and in recovery with a focus on economic development. They aim to enhance communities by creating employment, engage in economic development projects and provide educational and law programs that will provide empowerment and sustainability for families.  

Services: 

• Relief and recovery site and support for disaster survivors 
• Business case management and services  
• Intake referral  
• Education justice advocacy 
• Parent power division  

Eligibility: Robeson County residents  

Contact: Adrienne Kennedy, (910) 802-0081, hopeslcdc@gmail.com; Shalonda Regan, snregan87@gmail.com  

Connect Community 

Counties: Robeson 

Description: CONNECT Community, Inc. connects adolescents and their caregivers who live in rural, southeastern North Carolina to community resources and opportunities. They promote parental resilience, foster social connections and provide knowledge of parenting and child development. 

Services: 

• Caregiver Training and Workshops 

• Family Events and Gatherings 
• Adolescent Summits and Support Groups 

Eligibility: Robeson County residents 

Contact: Kewanda Merritt, kewanda.merritt@connectcmty.org  

Love Our Children NC 

Counties: New Hanover 

Description: Love Our Children is an education advocacy organization focused on improving the experience of children in New Hanover County public schools. The organization brings together families and community members to encourage the New Hanover School Board to make policy changes that would best support children in school.  

Services:  

• Campaigns focused on ending school suspensions and seclusion 
• Providing a space for parents to organize and advocates for school policy changes 
• Connections related to early childhood education and mental health 

Eligibility: New Hanover County residents 

Contact: Peter Rawitch, loveourchildrennc@gmail.com or visit their contact page. Click here for Love Our Children NC’s Facebook page.  

North Carolina Youth Violence Prevention Center 

Counties: Robeson

Description: The North Carolina Youth Violence Prevention Center (NC-YVPC) supports the needs of youth and families by providing a continuum of services to prevent future violence, support victims, and promote resiliency in coping with life stressors. 

Services: 

• Teen court: A restorative justice approach to reducing crime, Teen Court developed alternative pathways to empower youth to avoid further involvement in the judicial process by diverting them to community service.  
• VEEP: Addresses victims of school-related crime such as bullying and teen dating violence, child abuse, domestic violence, and sexual assault.  
• RACER Initiative: Robeson Adverse Childhood Experiences & Resilience Initiative, raises public awareness using effective messaging, helping residents understand, recognize and prevent adverse childhood experiences, establish a task force designed to map resources, inventory services and implement a strategic plan for creating a service continuum for prevent & intervention efforts focusing on ACES, and facilitate educational opportunities on the causes of ACEs and the universal impact  

Eligibility: Robeson County residents  

Contact: James Barbee, James.barbee@co.Robeson.nc.us  

Family Support Network of Southeastern NC (FSN SENC) 

Counties: Bladen, Brunswick, Columbus, Cumberland, Duplin, New Hanover, Pender, Robeson, Sampson. 

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources.  

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. 

Contacts: Main office: 910-792-6133; fsnsoutheastern@gmail.com

Parents for Public Schools of Pitt County 

Counties: Pitt County 

Description: Parents for public Schools of Pitt County advances the role of families and communities in securing a high-quality public education for each child. 

Services: 

• Parent Engagement Program: A cohort that meets one day per month to prepare parents to be well equipped and empowered advocates of public education. 
• Community Conversations: Data gathered from Pitt County citizens throughout a school year regarding their experiences with Pitt County Schools. Themes and issues are reported to the BOE with changes.  

• School Tours: Tours are given to community leaders, families, and elected officials to show that school quality does not match school report card grade. 

Eligibility: Any parent/guardian whose student attends Pitt County Schools. 

Contact: Phone: (252) 758-1604 ext. 201; Email: info@ppspittcounty.org

Family Support Network of Eastern NC (FSN ENC) 

Counties: Beaufort, Bertie, Carteret, Craven, Edgecombe, Greene, Halifax, Hyde, Johnston, Lenoir, Martin, Nash, Northampton, Onslow, Pamlico, Pitt, Wayne, Wilson. 

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources. 

Services: All FSN Regional Affiliates Offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

• Specific to Pitt County: 

• Coffee and Chat Virtual Parents Connection Group: 2nd Thursday of every month 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. 

Contacts: Faith Mosley at faith@aacfnc.org; Director@fsnenc.org; Phone- 252-917-4110

Family Support Network of Northeastern NC (FSNNENC) 

Counties: Camden, Chowan, Currituck, Dare, Gates, Hertford, Pasquotank, Perquimans, Tyrrell, Washington 

Description: Family Support Network provides information, support, and training for families who have children of all ages with all types of special needs. They match families with parents who have children with similar disabilities, coordinate parent support and education groups, offer training on topics of interest for families and professionals, one-on-one assistance, and provide information & access to resources.  

Services: All FSN Regional Affiliates offer: Parent-to-Parent Support; Parent Mentor Orientation; Information & Referral; Support Groups & Workshops; Service System Navigation Support; Parent to Parent Matching for Rare Disorders. 

• Circle of Parents Support Group: 2nd and 4th Tuesdays and Thursdays of each month 

Eligibility: Parent of child who were born with or “at risk” for developmental disability; who have special health care needs; who have complex developmental, medical, behavioral issues that impacts developmental success; who have learning disabilities; who have mental health/behavioral disorders; and/or who are in a foster care system. 

Contacts: Office-252-333-1233; Work Cell-252-339-0695; faith@aacfnc.org